Browsing by Subject "Families"
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Item Evaluation of the burdens and benefits of participation in research by parents of children with life-limiting illnesses(RCN Publishing, 2019-09-16) Hopper, Audrey; School of NursingBACKGROUND: Research is needed to improve care and diminish suffering for children with life-limiting illnesses and their parents. However, there are doubts about whether it is possible to conduct paediatric end of life research safely and ethically, as it may unduly burden or inadvertently harm participants. AIM: To compare and evaluate responses from participants to the assessments of burdens and benefits that were conducted at two timepoints during a phenomenological study that investigated parents' experiences of having a child with life-limiting cancer participate in a Phase I clinical trial. DISCUSSION: Parents reported that participating in the study was beneficial and resulted in minimal burden or distress. The assessment of benefits and burdens at the first timepoint appeared sufficient to understand participants' experiences. CONCLUSION: This study adds to the evidence that research may be safely and effectively conducted with parents of children who are deceased or have life-limiting illnesses. Further research is needed to evaluate the most effective timing of assessments of the burdens and benefits of their participation in research. IMPLICATIONS FOR PRACTICE: It is important when conducting research with people with life-limiting illnesses or their family members to assess the burdens and benefits of their participation, to understand their experiences and assist in its conduct.Item Predicting Treatment Response of Adolescents with Serious Emotional Disturbance(APNA 25th Annual Conference, 2011-10-20) Oruche, Ukamaka M.System of care (SOC) philosophy values child-guided and family-driven care and emphasizes that services must be delivered in a way that enhances dignity, respects wishes and goals, maximizes opportunities for active involvement for adolescents and their families. Our specific aim was to was to examine whether changes in adolescent personal strengths and family functioning over 12 months predicted changes in behavioral and social functioning for adolescents with disruptive disorders who participated in a SOC program.Item A tradition of giving(2016-05-19) Osili, Una; Clark, Chelsea; Bergdoll, JonathanThis project examines an underexplored topic—intra-family connections across generations (as opposed to inter-family connections)—and takes it one step further. The study provides a more useful framework for understanding the transmission of giving attitudes and behaviors within families than what was previously available using a traditional generational lens.Item Vaccinated members of Luther family.(Indiana State Board of Health, 1904-09)Mrs. Frank Luther and children, vaccinated and in same rooms with the father when he had smallpox, but they did not have the disease.